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Active Users Record: 153 | Record Set On: 03 Jun 2005 at 09:40:13 AM
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| PDSA News & Forum Suggestions |
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FORUM SWITCH FRIDAY, FEB. 12, 2010
On Friday, February 12, 2010 (in the afternoon, Eastern time) the new discussion group at www.pdsa.org will be the only discussion group available for posting. This discussion group will be changed to 'read-only' and will be available in that mode for several years.
To get to the new group go to www.pdsa.org and click on Join the Community/Discussion Groups/*NEW Groups or click on the link under Popular Pages.
If you have any questions concerning the switch send a message to pdsagroup@aol.com or info@pdsa.org.
See you in the new space!
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10 Feb 2010
06:14:45 AM |
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New Book by Joan Young
Wish By Spirit - An ITP Memoir by Joan Young.
After mysterious bruises appeared on her arms, a small cut on her tongue continued to bleed, and each day brought a struggle to maintain the life she knew, Joan went from disbelief through denial and finally learned she had ITP. A high dose of prednisone not only failed to help solve Joan’s bleeding problem, but was instrumental in causing a seizure and a heart condition. When a splenectomy and several other drugs suggested by her hematologist left her depressed, demoralized, with additional conditions to treat, and a platelet count that hovered near zero, she began her own search for a cure. Joan’s journey from diagnosis to remission lasted 18 months. The insights into her life, the healing practices she learned, and her spiritual shift changed her life forever. Reading this book may change yours.
Joan Young founded the Platelet Disorder Support Association in 1998.
You can purchase a signed copy from Joan at www.gemwrite.com. The book is also available on-line from Amazon, Barnes and Noble, and the PDSA Platelet Store |
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This forum is now read-only - new group is active
PDSA has completed the switch to the new discussion group. This forum is now read-only. The registration feature has been turned off. Since there is so much good information on the site, it will be available to read for a few years.
Please join us at the new location. Go to www.pdsa.org and click on 'Join the Community/Discussion groups/NEW group/' to find us.
If you have registered in the past on this site, you will need to register again on the new site, since these two groups are not linked. |
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22 Feb 2010
11:15:53 AM |
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Transition to New Discussion Group
PDSA will be transitioning to a new discussion group. You can go to it directly at http://www.pdsa.org/join-the-community/discussion-groups/forums.html or click on the link from the "Join the Community" section of the top drop-down menu on www.pdsa.org
The discussion group transition is part of major changes to the PDSA web site. The entire Web site has been reconstructed to enable PDSA in incorporate many new features, including the creation of a PDSA Web sign-on that is the same as your discussion group sign-on.
The new discussion group and Web platform will provide a way to add new features such as the ability to locate Web site members, view their public profiles, post personal stories to your profile, upload photos and videos to your profile, write and submit content for publishing on the PDSA Web site, and shop the online store without a separate login.
Please take a look at the new discussion group, create a sign-on, and post a message. You will need to register again since there are no links between this discussion group and the new one. It would also be helpful to use the same sign-on as the current discussion group so others will recognize you.
In the next few weeks the input to this discussion group will be turned off, although it will be available for a year or so to allow people to continue to read it.
If you have any questions, you can contact me or Sandi and we'll be happy to assist. |
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03 Feb 2010
4:08:31 PM
by: Sandi  |
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Become a member, receive our newsletter
Our members receive "The Platelet News", our 20+ page quarterly newsletter, the option of participating in our name exchange program, and discounts to our meetings. Memberships and contributions are tax deductible. Help us help you by contributing to our organization. |
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Local support group meetings
Check PDSA's Web site for all local support group meetings
See: http://www.pdsa.org/join-the-community/local-groups.html
for a list of local groups and contact information. |
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09 Dec 2009
5:20:45 PM
by: Gort |
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| Adults with ITP |
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Newly Diagnosed & Frequently Asked Questions
If you are new to ITP or someone close to you is, this is a good place to start finding out information. The regulars on this board will be happy to help you with any questions they have. Please remember however that we are not medical professionals and you should always check information with your doctor |
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07 Feb 2010
03:39:23 AM
by: crane11 |
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General ITP Discussion
Discuss general issues about, or things that stem from ITP |
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3074 |
09 Feb 2010
02:42:09 AM
by: julia |
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Treatment - General
Discuss treatment options including Prednisone, WinRho, Rituxin, etc & Splenectomy
To discuss Natural & Alternative treatments, see the section below titled Natural Treatment Methods |
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3607 |
11 Feb 2010
01:47:11 AM
by: Birgitta-A |
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Natural Treatment Methods
Discuss alternative methods and treatments here |
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08 Feb 2010
6:09:10 PM
by: pj2007 |
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Recommended Doctors
Want to share info about doctors? You can do that here.
Please remember to be careful what you post however as doctors don't have the opportunity to defend themselves here |
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09 Feb 2010
11:51:01 AM
by: Melinda |
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"Secret Women's Business" :o)
Ok, if you wanna talk about women's issues including menstral cycles, the Pill etc etc - this is the place to do it without worrying about offending anyone |
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08 Feb 2010
06:47:50 AM
by: gsh |
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Social Chat
Feel free to discuss non-ITP related matters here. Get to know your fellow ITP'ers. |
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2080 |
11 Feb 2010
5:47:48 PM
by: KimIL |
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| Parents of Children with ITP |
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Newly Diagnosed
For parents of children who have recently been diagnosed with ITP. Frequently asked questions etc can be discussed here. |
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08 Feb 2010
11:44:36 AM
by: nroe33 |
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General Discussion for Parents
If your child has ITP you'll find support from other parents in this section of the ITP Discussion Board |
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08 Feb 2010
11:55:34 AM
by: nroe33 |
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Social Chat for Parents
A place for parents of children with ITP to interact and socialise outside the topic of ITP |
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21 Jan 2010
4:39:26 PM
by: Sandi |
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| TEENS with ITP |
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General Discussion for TEENS
If you're a teen with ITP or you have a friend or family member with ITP and you need to talk with other teens who understand here's the place for you. |
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27 Jan 2010
04:31:52 AM
by: Angel85 |
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| ITP & Pregnancy |
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The PDSA Pregnancy Website
NEW! Frequently Asked Questions - ITP and Pregnancy
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Treatments During Pregnancy
Discuss treatment issues specifically realted to those who are expecting or intend to become pregnant |
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20 Dec 2009
4:10:46 PM
by: gsh |
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General Pregnancy Discussion
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09 Feb 2010
6:10:42 PM
by: marionmenzin |
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Post Labor
Discuss anything to do with issues after your baby is born including baby's platelet counts & breastfeeding |
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29 Oct 2009
6:29:43 PM
by: gsh |
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Birth Announcements
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13 Jan 2010
08:37:01 AM
by: bedsbaby |
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| Other Illnesses & Disorders |
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Antiphospholipid Syndrome
Antiphospholipid Syndrome |
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16 Jan 2010
6:57:50 PM
by: Sandi |
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TTP
Thrombotic Thrombocytopenic Purpura |
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30 Sep 2009
04:54:56 AM
by: sn0wflak3g1rl |
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HIGH Platelet Count
I guess this is basically the opposite of ITP, you can discuss issues relating to high platelet counts here |
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Other Blood Related Disorders
Other blood related disorders including Hemolytic Anemia |
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15 Aug 2009
4:46:50 PM
by: rrg293 |
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Lupus
Do you have ITP and Lupus? Or have questions about how Lupus can relate to ITP? |
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04 Feb 2010
06:25:55 AM
by: KimIL |
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CFS & Fibromyalgia
Do you also have CFS or FM? Discuss with others the issues associated with these disorders |
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Cancer
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Other
Including things like MS etc |
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17 Jan 2010
8:14:48 PM
by: bdunin |
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| Links to Websites & Information |
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Platelet Disorder Support Association Website
This message Forum is a part of the Platelet Disorder Support Association website. Be sure to help support the service the PDSA provides. One way of doing this is by becoming a member, for more information visit the PDSA main website. You can also visit the Platelet Store and view publications & contributions through the main PDSA website via this link |
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Shop The Platelet Store
Want an unusual gift? Shop the Platelet Store. You can find a cuddly fleece blanket, “Coping with Prednisone” books, T-shirts, and more. |
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WARNINGS
Many substances we encounter daily can affect our platelets. This link will take you to the PDSA webpage that contains a list of many of these substances |
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Become a Member of the PDSA
The Platelet Disorder Support Association is a non-profit corporation founded in August, 1998 to provide information, support, and encourage research about ITP and other platelet disorders. As a member you will be showing your support for this worthwhile cause. We rely on our member contributions to sustain and grow our services. Thank you for your support. |
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PDSA Treatments Page
This webpage has lots of info on ITP treatments of every kind. It is a very useful resource and you should take a look. |
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American Society of Hematology
The latest hematology information including research presented at their annual meeting |
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