Live chat room currently unavailable
We apologise for the inconvenience
Temporary Substitute room
select PDSA from available rooms

HomeAbout UsDonationsMembershipsProducts & PublicationsITP InfoDoctor InfoContact Us
Server Time: 8:11:26 PM Your Local Time:
ITP Discussion Forum
ITP Discussion Forum
Home | Profile | Register | Active Topics | Active Polls | Members | Search | FAQ |  
Username:
Password:
Save Password
Forgot your Password?

  Forum Topics Posts Last Post  
Collapse Active Users Active Users
Active Members: 2 | Guests: 12 || Total: 14       [ Administrators | Moderators ]
Active Users Record: 153 | Record Set On: 03 Jun 2005 at 09:40:13 AM
Members Online: Tamar | abe76
Collapse This Category PDSA News & Forum Suggestions    
Visit Discussion Netiquette Guidelines Discussion Netiquette Guidelines
General rules for the discussion groups. Click on 'Rules'
 
Visit New Book by Joan Young New Book by Joan Young
Wish By Spirit - An ITP Memoir by Joan Young.

After mysterious bruises appeared on her arms, a small cut on her tongue continued to bleed, and each day brought a struggle to maintain the life she knew, Joan went from disbelief through denial and finally learned she had ITP. A high dose of prednisone not only failed to help solve Joan’s bleeding problem, but was instrumental in causing a seizure and a heart condition. When a splenectomy and several other drugs suggested by her hematologist left her depressed, demoralized, with additional conditions to treat, and a platelet count that hovered near zero, she began her own search for a cure. Joan’s journey from diagnosis to remission lasted 18 months. The insights into her life, the healing practices she learned, and her spiritual shift changed her life forever. Reading this book may change yours.

Joan Young founded the Platelet Disorder Support Association in 1998.

You can purchase a signed copy from Joan at www.gemwrite.com. The book is also available on-line from Amazon, Barnes and Noble, and the PDSA Platelet Store
 
New Posts Transition to New Discussion Group
PDSA will be transitioning to a new discussion group. You can go to it directly at http://www.pdsa.org/join-the-community/discussion-groups/forums.html or click on the link from the "Join the Community" section of the top drop-down menu on www.pdsa.org

The discussion group transition is part of major changes to the PDSA web site. The entire Web site has been reconstructed to enable PDSA in incorporate many new features, including the creation of a PDSA Web sign-on that is the same as your discussion group sign-on.

The new discussion group and Web platform will provide a way to add new features such as the ability to locate Web site members, view their public profiles, post personal stories to your profile, upload photos and videos to your profile, write and submit content for publishing on the PDSA Web site, and shop the online store without a separate login.

Please take a look at the new discussion group, create a sign-on, and post a message. You will need to register again since there are no links between this discussion group and the new one. It would also be helpful to use the same sign-on as the current discussion group so others will recognize you.

In the next few weeks the input to this discussion group will be turned off, although it will be available for a year or so to allow people to continue to read it.

If you have any questions, you can contact me or Sandi and we'll be happy to assist.
8 49 03 Feb 2010
4:08:31 PM
by: Sandi Jump to Last Post
 
Visit 2009 PDSA ITP Conference DVD Set 2009 PDSA ITP Conference DVD Set
PDSA's 9th Annual conference, June 26 - 28, at the Wyndham Orlando Resort, was amazing! You can see/hear all the presentations on the 5 DVD/3 CD set now available at the Platelet Store. You can read more information about the conference at http://www.pdsa.org/conference.htm
 
Visit FREE DVD with membership FREE DVD with membership
The "Inside Stories" DVD features 5 videos of people sharing their ITP experiences - free with your PDSA membership
 
Visit 50% SALE at PDSA Store 50% SALE at PDSA Store
The PDSA Store is having a 50% Sale on their wonderfully cozy Fleece Blanket (regular price $20, now only $10) plus shipping
 
Visit Become a member, receive our newsletter Become a member, receive our newsletter
Our members receive "The Platelet News", our 20+ page quarterly newsletter, the option of participating in our name exchange program, and discounts to our meetings. Memberships and contributions are tax deductible. Help us help you by contributing to our organization.
 
Old Posts Local support group meetings
Check PDSA's Web site for all local support group meetings

See: http://www.pdsa.org/join-the-community/local-groups.html
for a list of local groups and contact information.
0 0 09 Dec 2009
5:20:45 PM
by: Gort Jump to Last Post
  View Archived posts
Forum Locked Announcements
For progress reports and announcements relating to this forum, view here
0 0 12 May 2009
3:28:01 PM
by: Sandi Jump to Last Post
  View Archived posts
Old Posts Message Board Admin Suggestions
Want a new topic added? Think something should be changed? Make all your suggestions for this forum here.
1 7 05 Jul 2009
10:40:15 PM
by: harveyc Jump to Last Post
  View Archived posts
Collapse This Category Adults with ITP    
New Posts Newly Diagnosed & Frequently Asked Questions
If you are new to ITP or someone close to you is, this is a good place to start finding out information. The regulars on this board will be happy to help you with any questions they have. Please remember however that we are not medical professionals and you should always check information with your doctor
120 1345 07 Feb 2010
03:39:23 AM
by: crane11 Jump to Last Post
  View Archived posts
New Posts General ITP Discussion
Discuss general issues about, or things that stem from ITP
327 3073 07 Feb 2010
6:49:22 PM
by: Sandi Jump to Last Post
  View Archived posts
New Posts Treatment - General
Discuss treatment options including Prednisone, WinRho, Rituxin, etc & Splenectomy
To discuss Natural & Alternative treatments, see the section below titled Natural Treatment Methods
231 3593 08 Feb 2010
7:22:16 PM
by: dominno1987 Jump to Last Post
  View Archived posts
New Posts Natural Treatment Methods
Discuss alternative methods and treatments here
30 334 08 Feb 2010
6:09:10 PM
by: pj2007 Jump to Last Post
  View Archived posts
Old Posts Recommended Doctors
Want to share info about doctors? You can do that here.

Please remember to be careful what you post however as doctors don't have the opportunity to defend themselves here
13 41 11 Jan 2010
07:07:56 AM
by: Beanie12237 Jump to Last Post
  View Archived posts
New Posts "Secret Women's Business" :o)
Ok, if you wanna talk about women's issues including menstral cycles, the Pill etc etc - this is the place to do it without worrying about offending anyone
37 227 08 Feb 2010
06:47:50 AM
by: gsh Jump to Last Post
  View Archived posts
New Posts Social Chat
Feel free to discuss non-ITP related matters here. Get to know your fellow ITP'ers.
183 2076 08 Feb 2010
7:15:44 PM
by: KimIL Jump to Last Post
  View Archived posts
Collapse This Category Parents of Children with ITP    
New Posts Newly Diagnosed
For parents of children who have recently been diagnosed with ITP. Frequently asked questions etc can be discussed here.
28 254 08 Feb 2010
11:44:36 AM
by: nroe33 Jump to Last Post
  View Archived posts
New Posts General Discussion for Parents
If your child has ITP you'll find support from other parents in this section of the ITP Discussion Board
208 1379 08 Feb 2010
11:55:34 AM
by: nroe33 Jump to Last Post
  View Archived posts
Old Posts Social Chat for Parents
A place for parents of children with ITP to interact and socialise outside the topic of ITP
8 23 21 Jan 2010
4:39:26 PM
by: Sandi Jump to Last Post
  View Archived posts
Collapse This Category TEENS with ITP    
Old Posts General Discussion for TEENS
If you're a teen with ITP or you have a friend or family member with ITP and you need to talk with other teens who understand here's the place for you.
14 96 27 Jan 2010
04:31:52 AM
by: Angel85 Jump to Last Post
  View Archived posts
Collapse This Category ITP & Pregnancy    
Visit The PDSA Pregnancy Website The PDSA Pregnancy Website
NEW! Frequently Asked Questions - ITP and Pregnancy

 
Old Posts Treatments During Pregnancy
Discuss treatment issues specifically realted to those who are expecting or intend to become pregnant
8 58 20 Dec 2009
4:10:46 PM
by: gsh Jump to Last Post
  View Archived posts
New Posts General Pregnancy Discussion
16 72 08 Feb 2010
06:15:27 AM
by: Caroline109 Jump to Last Post
  View Archived posts
Old Posts Post Labor
Discuss anything to do with issues after your baby is born including baby's platelet counts & breastfeeding
1 10 29 Oct 2009
6:29:43 PM
by: gsh Jump to Last Post
  View Archived posts
Old Posts Birth Announcements
2 11 13 Jan 2010
08:37:01 AM
by: bedsbaby Jump to Last Post
  View Archived posts
Collapse This Category Other Illnesses & Disorders    
Old Posts Antiphospholipid Syndrome
Antiphospholipid Syndrome
2 6 16 Jan 2010
6:57:50 PM
by: Sandi Jump to Last Post
  View Archived posts
Old Posts TTP
Thrombotic Thrombocytopenic Purpura
1 2 30 Sep 2009
04:54:56 AM
by: sn0wflak3g1rl Jump to Last Post
  View Archived posts
Old Posts HIGH Platelet Count
I guess this is basically the opposite of ITP, you can discuss issues relating to high platelet counts here
0 0     View Archived posts
Old Posts Other Blood Related Disorders
Other blood related disorders including Hemolytic Anemia
1 1 15 Aug 2009
4:46:50 PM
by: rrg293 Jump to Last Post
  View Archived posts
New Posts Lupus
Do you have ITP and Lupus? Or have questions about how Lupus can relate to ITP?
37 535 04 Feb 2010
06:25:55 AM
by: KimIL Jump to Last Post
  View Archived posts
Old Posts CFS & Fibromyalgia
Do you also have CFS or FM? Discuss with others the issues associated with these disorders
0 0     View Archived posts
Old Posts Cancer
0 0     View Archived posts
Old Posts Other
Including things like MS etc
1 3 17 Jan 2010
8:14:48 PM
by: bdunin Jump to Last Post
  View Archived posts
Collapse This Category Links to Websites & Information    
Visit Platelet Disorder Support Association Website Platelet Disorder Support Association Website
This message Forum is a part of the Platelet Disorder Support Association website. Be sure to help support the service the PDSA provides. One way of doing this is by becoming a member, for more information visit the PDSA main website. You can also visit the Platelet Store and view publications & contributions through the main PDSA website via this link
 
Visit Shop The Platelet Store Shop The Platelet Store
Want an unusual gift? Shop the Platelet Store. You can find a cuddly fleece blanket, “Coping with Prednisone” books, T-shirts, and more.
 
Visit WARNINGS WARNINGS
Many substances we encounter daily can affect our platelets. This link will take you to the PDSA webpage that contains a list of many of these substances
 
Visit Become a Member of the PDSA Become a Member of the PDSA
The Platelet Disorder Support Association is a non-profit corporation founded in August, 1998 to provide information, support, and encourage research about ITP and other platelet disorders. As a member you will be showing your support for this worthwhile cause. We rely on our member contributions to sustain and grow our services. Thank you for your support.
 
Visit PDSA Treatments Page PDSA Treatments Page
This webpage has lots of info on ITP treatments of every kind. It is a very useful resource and you should take a look.
 
Visit American Society of Hematology American Society of Hematology
The latest hematology information including research presented at their annual meeting
 
Statistics
  3484 of 4009 Members have made 13195 posts in 27 forums, with the last post on 08 Feb 2010 7:22:16 PM by: dominno1987.
There are currently 1277 topics.
Please welcome our newest member: nroe33.
New Posts Contains new posts since last visit.
Old Posts No new posts since the last visit.
ITP Discussion Forum
Active Users: 40 / Visits Today: 2646
Highest Active Users: 128
Go To Top Of Page
Snitz Forums 2000